Kennedy’s hearing signifies how close a man with medically racist beliefs is to becoming the US’s leading health official

  • AmidFuror@fedia.io
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    2 days ago

    Cystic Fibrosis was listed.

    There are genetic diseases more common in each (previously isolated) population. It’s a fact which can be used to target screenings in a way that minimizes residual risks.

    Many things in the list are different for socioeconomic reasons as well as genetic reasons. That doesn’t mean the genetic differences don’t exist or that scientific racism is behind them.

    Racism is when you treat individuals not according to their own characteristics, but the characteristics (correctly assessed or not) attributed to their race. But public health efforts are not about individuals and often need to use racial background to help provide the care most likely to succeed.

    Personal genomics will help us move to more individualized medicine, but it’s not ready or affordable enough to apply to every case at the moment.

    • Snot Flickerman@lemmy.blahaj.zone
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      2 days ago

      And if you think the gaggle of idiots running the country right now (up to and including RFK Jr.) has any intent to make personal genomics affordable to anyone but themselves, I’ve got a fucking bridge to sell you.

      • Schadrach@lemmy.sdf.org
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        4 hours ago

        You don’t need personal genomics to broadly do better than simply lumping everyone in one bucket. Various ethnic/racial groups have been mostly reproductively isolated from each other for most of history, which means certain things are significantly more common in some groups than others, which means you can get more effective use of resources by targeting things like screening and prevention at groups where the disease is more likely.

        Personal genomics would let you target even more closely, but using race or family history is just estimating genomics by proxy.

        For example, sickle cell and black folks, or cystic fibrosis and white folks, or maple syrup urine disease and the Amish or methemoglobinemia and one family from eastern Kentucky.

      • AmidFuror@fedia.io
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        2 days ago

        I do not. I don’t trust RFK Jr to do anything right except possibly by accident.

        Just reinforcing the point that there are legitimate and non-racist uses of race information in medicine.

        Edit: Keep in mind that the comment I replied too seemed to take issue with a list of conditions related to genetics that have different propensities in different races. There are racists like Kennedy on the one side and then there are idiots on the other who think that any credence given to nature over nurture is indicative of racism and could not possibly be backed by objective facts.

        • Schadrach@lemmy.sdf.org
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          4 hours ago

          I do not. I don’t trust RFK Jr to do anything right except possibly by accident.

          I actually agree with him about some of the food additive stuff. Shame he blew his stopped clock moment before even being confirmed.