A few days ago I randomly got tinnitus out of nowhere and I didn’t understand what’s up. An hour or so ago I finally understood/learned what’s happening to me and read up on tinnitus and I’m devastated. I’m only over 20 and having this for the rest of my life as it becomes worse is heartbreaking to me. I was already overly sensitive to certain noises and am in love with music but with tinnitus I lost something precious and permanently gained somethimg that I just will need to live with. I’m heartbroken and scared. I know I will learn to accept it within a week as my brain processes this new experience but right now I just feel gutwrenchingly horrible. Especially so when I was already having some other physical and mental health issues that I’m unable to cope with and this adds to the burden. I need some advice on how to live with it and some comfort in knowing of other people going through the same. Thank you. :(

(I don’t live is US if that matters in any way.)

  • saintash72@lemmy.world
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    6 hours ago

    My wife is an audiologist who specializes in tinnitus counseling. She’s telling me that Internet research and tinnitus groups tend to lead people to more negative thinking that often leads to spiraling. She says the American Tinnitus Association website has the best, research -based information and guidance and that pretty much everything else on the Internet should be avoided. Www.ata.org Hope this helps.

  • OBJECTION!@lemmy.ml
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    6 hours ago

    Oof, that’s rough.

    For temporary relief, you can find stuff on YouTube that plays sounds at different high pitched frequencies. You’ll still be hearing the sound but having it come from an external source can provide relief (at least for some people). Noise machine apps have options for different “colors” of noises, so you can experiment and try to find something that works. Also, I can’t explain it at all but for some reason this music does something for me.

    Don’t assume that it’ll get worse or that it’ll always be as bad as it is now. If it’s still there when you’re 40, let 40 year old you deal with it. If it sticks around, you’ll learn to live with it. My experience was that it’s worst when you first get it because you’re not used to it, you don’t have any tools for coping with it, and you can’t accept it.

    Take it day by day. If you can deal with it for just one day, then you can apply that to every day. So all you have to worry about is today.

    But I’ll tell you, shit sucks. There’s an herbal supplement in the US that’s marketed as helping with tinnitus. It doesn’t work, and I knew it wouldn’t work, I saw the word “homeopathic” on the label and I knew exactly what it meant. I bought it anyway. My dad suffers from it too, and I saw the same one in his medicine cabinet.

    I think my case is relatively minor, too, but I can remember being that desperate for a moment of relief. But for me it’s faded into the background and I usually don’t notice it. Tbh I’ve come to find it almost handy, in that it’s a way of my body providing feedback to tell me when I’m stressing myself out. Kinda like that thing with old folks where they can tell a storm coming because it makes their joints ache. The sensation itself is just a sensation, it’s annoying and unpleasant, but my experience is that what makes it really bad is when you have other thoughts attached to that. And the good news is that it’s possible to change the thoughts you associate with the sound even if you can’t change the sensation. It just takes time and mindfulness.

  • Baguette@lemmy.blahaj.zone
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    9 hours ago

    If you suddenly developed it without any major accidents (like your eardrums burst from pressure) or continued harmful noises (construction is a big one). You should probably get it checked

    Could be a symptom of an underlying issue and it might go away if you fix that

    If you come back from that and it genuinely is tinnitus, then I recommend:

    1. Keeping your mind distracted. Mostly easy if you are doing day to day stuff, hard when you’re trying to sleep
    2. Play ambient noises. I like ocean waves if I have problems with mine, it helps drown out the static
    3. Exercise. Doesn’t actually help reduce it, but it does help make your body ignore it IMO, and makes it easier to fall asleep.
  • Krusty@quokk.au
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    10 hours ago

    Youuuuu juuuust leeearrrn to deeeeeal wwwwith iiiitt.

  • SystemDisc@feddit.org
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    7 hours ago

    I’ve had tinnitus as long as I can remember, and it doesn’t bother me at all. I’ve gotten used to it. I mean, I never don’t hear it, so there’s no alternative.

  • CultLeader4Hire@lemmy.world
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    8 hours ago

    I developed electric crickets in my left year about 8-9 years ago now, it’s not tinnitus because it’s not the little hairs in my ears it’s the nerve between my ear and brain shorting out but the result is the same - when I had my hearing tested they told me 3 months is the time most people either start being able to ignore it OR need supportive care, they offered someone to talk to and/or antidepressants if I hadn’t adjusted in 3 months, thankfully I did and I can tune it out, or tune in if I’m trying to sleep I can just listen to it and I fall asleep.

    I would talk to your doctor, if you haven’t already, for the physical aspect of it and mention to them you’re struggling mentally with it, it’s SUPER common to the point my doctors were addressing it preemptively so they might be able to give you tools to help make things easier.

  • HubertManne@piefed.social
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    8 hours ago

    my wife says white noise helps like having a fan on. curiously she said it kinda helps her go to sleep as she pretends its white noise and that she is outside and it kinda helps get to sleep if you don’t think about it as a bad thing. like think of it as white noise you intentionally put on to go to sleep.

  • buttmasterflex@piefed.social
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    17 hours ago

    Short answer: Get an evaluation by an audiologist, if possible, to determine if something can be done.

    Long answer: Depending on the personal cause of tinnitus, solutions range from nothing to getting hearing aids with specific software that provides tinnitus relief. I have genetic, moderate to severe hearing loss in higher frequencies and have very noticeable tinnitus. The complications from hearing loss with tinnitus can vary, but personally were resulting in increased sensitivity to noise throughout the day, irritability, and diminished ability to communicate (I couldn’t hear what my spouse or kids were saying when there was any kind of background noise present). It led me to never want to go anywhere or do anything outside our home because I couldn’t hear or enjoy anything.

    I went to an audiologist, had a bunch of tests, and was prescribed a set of hearing aids. Said hearing aids play soft ocean noises in addition to boosting the frequencies I have diminished hearing in. The ocean noises allow the brain to train itself to treat the tinnitus as a routine background noise instead of a panic inducing “danger” sound. Over time, it has helped in significantly reducing my attention to the tinnitus. It will never go away, and I have to sleep with ocean sounds playing so I don’t go insane.

    • SolarMonkey@slrpnk.net
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      9 hours ago

      I get mine fitted Monday. I’ve already got the speaker, but my tinnitus is an entire… octave? above the sound from the recording, incredibly high-pitched static. Tho I use a babbling brook because the other ones are just… very annoying. I don’t really find the speaker helpful, but my audiologist said it was unlikely to do much on its own, so.

      I’m really hoping the hearing aids work better. But at least I got obnoxiously colored ones!

      • buttmasterflex@piefed.social
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        8 hours ago

        Nice! Glad you’re getting yours fitted soon! Honestly, mine have been literally life changing. I truly didn’t realize how bad my hearing had gotten because the change was so gradual. The sound generated through the hearing aids is much better than an external speaker, and after the adjustment period, I sometimes don’t even notice it’s playing. The brain learns to filter it out, along with the tinnitus. It’s different than trying to block or mask it with a speaker. Not a cure, but much better. I hope yours work well for you!

  • Kiwi_fella@lemmy.world
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    13 hours ago

    I’ve had Meniere’s Disease since I was 17, and the tinnitus comes with it at no extra cost. Thirty five years on and all I can say is you just learn to cope. Some days it’s louder and some days you don’t register it despite it being a constant. It’s tough at the start, but take some comfort in knowing you’ll adapt. There are plenty of people out there who’ve gone through what you’ve experienced, so you’ve already got a support community.

  • riquisimo@lemmy.dbzer0.com
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    11 hours ago

    I have it, caused my hearing damage (non genetic). I’ve noticed some muscle relaxers will increase the sound, but when the meds wear off it goes back to normal.

    Broadly speaking, I live in a quiet environment. Over there past few years it seems like it’s gotten better. Like since I hear it slightly all the time my brain ignores it better. YMMV.

    But yes, see a doctor about it. And don’t freak out. What comes on suddenly may go away slowly too. My sudden episodes sometimes last two weeks, but they subside.

  • Elting@piefed.social
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    12 hours ago

    Ive had tinnitus throughout my living memory. Unsure if it’s because I was a loud child or something inherent to my physiology. Maybe having no memory of perfectly crisp hearing makes it easier to forget, but I can’t say that it has truly affected my quality of life. I can still sing in a choir and listen to jazz. Mine might be a milder case, I have no way of knowing, but please don’t allow it to keep you from doing what you enjoy.

    • Martineski@lemmy.dbzer0.comOP
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      11 hours ago

      After a few tests the SYS is in the range 120-140+ while pulse is consistently ~115-120. So per this chart it’s stage 2 as I understand. But I think I put the device wrong initially (or I do now) since the last few results after correcting have consistently been 120-~127 for SYS. I don’t understand the results and am not sure what to do with them. :(

      Edit: I’m about to depart in the middle of the night for emergency visit.

    • Apytele@sh.itjust.works
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      11 hours ago

      Sudden onset is very concerning OP. In the US most pharmacies have a FREE blood pressure check station. If the top number is over 160 and/or the bottom number is over 110 go to an urgent care, if the top number is over 180 go to an ER. If your blood pressure is normal make a primary care appointment or audiologist appointment because sudden onset still highly suggests that it’s a secondary symptom that may very well go away when the underlying cause is treated.

      TLDR; good news very possibly not actually permanent, bad news, you actually really need to check that you’re not sick.

  • Encrypt-Keeper@lemmy.world
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    13 hours ago

    Assuming you go to the doctor and find out you do have tinnitus and it’s permanent, I can totally understand the panic you’re feeling right now. It’s a very existential, pit of your stomach sense of dread you’re feeling right now.

    As somebody with tinnitus that is likely more severe than yours is right now, and have had it as young as you if not younger, you will get used to it with time, to the point that 90% of the time, you won’t hear it at all. Right now it’s going to seem far worse and suffocating because more than anything the tinnitus is triggered by remembering that you have it. Since it’s going to be stuck on your mind for awhile it might feel like you’re suffocating under it but as bad as I have it, it really is only an occasional annoyance.

    The important thing is to start protecting your hearing today. Ear plugs at concerts, plug your ears when the ambulance drives by, don’t blast the music in your car so loud.

    Don’t despair, when it’s really bad there are things that help like white noise, which can be generated on your phone or you can set up a fan at night. iPhones have a feature now that can add subtle nature sounds or white noise behind whatever else you’re listening to including music, if you find that’s something that helps you.

  • lordnikon@lemmy.world
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    18 hours ago

    I have lived with it for 20 years. I listen to a lot of music or podcasts to help not focus on it. I got relief once for about 2 hours after my ears popped on an airplane. Everyone is different but rubbing the pressure point behind my ear doesn’t go away but turns down the volume for a bit.

  • ProdigalFrog@slrpnk.net
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    18 hours ago

    You can get temporary tinnitus from an active ear infection or a swollen/inflamed ear, it may not be permanent.

    Were you exposed to any overly loud sounds recently, or chronically over the course of your life?

    • Martineski@lemmy.dbzer0.comOP
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      17 hours ago

      Just before that happened I was taking new meds to help with my lifelong issues of falling asleep and went to sleep with noise cancelling headphones on top of that. It was just for 2 weeks where on some days I skipped them so I took them 10 times. That’s the only major thing that changed recemtly that comes to my mind and I suspect it being the case but it may be unrelated and I will be seing a doctor rbout that. The substance is trazodoni hydrochloridum. I wasn’t listening to music very loudly but given I’ve been listening to it almost daily for ever decade as background sound to calm me down I expect my ears to have worn down and it to just have hit me in one go. D:

        • Martineski@lemmy.dbzer0.comOP
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          17 hours ago

          meaning it is very likely not permanent

          I honestly don’t believe it with my luck and I’d rather not give myself hopes and prepare myself for the worst. Today I will rest to let my brain process things and tomorrow I will investigate things more about what’s going on. I’m so disappointed with my body/situation in so many ways… :/

          I just realised that I should message my psych about that as well since she brought it up unprompted and recommended it to me to try for my sleep issues.

          • ryannathans@aussie.zone
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            14 hours ago

            Sudden onset tinitis should be treated as an urgent medical problem or medical emergency. There are a number of conditions that can cause it that are very nasty but reversible if caught early

      • Starya67@lemmy.world
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        17 hours ago

        Maybe you never noticed because you’ve been listening to music all the time.

        But certain meds can cause tinnitus. And Covid.